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Samples in periodicals archive:
Her family are constantly fundraising for the Tuberous Sclerosis Association to try to find a cure for the devastating condition.
Mrs James and her husband Perry have been the volunteer Welsh Organisers for the Tuberous Sclerosis Association since 1993.
Dr Chris Kingswood, head of research for the Tuberous Sclerosis Association (TSA), said: "In a matter of just a few years, we have moved from a point of minimal understanding and little hope.
The identification of the tuberous sclerosis genes was one of the achievements listed in the prize submission, along with a letter of commendation from the Tuberous Sclerosis Association.
Byline: Richard Porritt , presentationDerek Highe (centre) with fundraising neighbours and representatives of Kirkwood Hospice and the Tuberous Sclerosis Association HUNDREDS of Christmas lights that illuminated a Mirfield street have raised more than pounds 3,000 for charity.
As the former CEO of the National Tuberous Sclerosis Association, Ms.
Tuberous Sclerosis Consensus Conference: recommendations for diagnostic evaluation--National Tuberous Sclerosis Association.
Funding will go to the National Tuberous Sclerosis Association (NTSA), the only national, non-profit organization that provides support to those with TS and their families.