NAF continued in 2008 to attend and participate in various conferences including the National Society of Genetic Counselors, the Society of Neuroscience, American Academy of Neurology, and the NIH Office of Rare Diseases Coalition of Patient Advocacy Groups.
gov NICHD conducts and supports laboratory, clinical, and epidemiological research on the reproductive, neurobiologic, developmental and behavioral processes that determine and maintain the health of children, adults, families and populations NATIONAL INSTITUTES OF HEALTH (NIH) Mary Demory Office of Rare Diseases 6100 Executive Blvd.
This conference was sponsored by the National Heart, Lung, and Blood Institute (NHLBI), in collaboration with the Office of Dietary Supplements (ODS), the NIH Clinical Center (CC), the National Center for Complementary and Alternative Medicine (NCCAM), the National Institute of Neurological Disorders and Stroke (NINDS), the NIH Foundation and the Office of Rare Diseases (ORD) at the NIH.
Groft is director of the Office of Rare Diseases of the National Institutes of Health, and has worked diligently to stimulate and coordinate research on rare diseases and to broaden access to the human biomaterials needed to support this work.
Not to be a name dropper, but the program had quite the pedigree, being presented by The National Institute of Neurological Disease and Stroke, The Office of Rare Diseases, The Johns Hopkins University School of Medicine, and the Pediatric Neurotransmitter Disease Association.
A 1998 conference on laboratory diagnosis of Lyme disease convened by the National Institute of Allergy and Infectious Diseases (NIAID), Centers for Disease Control (CDC), and Office of Rare Diseases (ORD) recommended that "only bacterial antigens derived from OspA-deficient mutant of Borrelia burgdorferi be used in all diagnostic assays to circumvent false positive reactions likely to result from the use of OspA Lyme vaccines.
